WNY Regional Center for Autism Spectrum Disorders (ASD)
Pro Tips for Parents
- Here are some tips to help you and your family during the COVID-19 pandemic.
- Suddenly our kids are home, the rest of the school year is up in the air and there is almost no where to go.
- Does your child dread going to the hair salon or barbershop? Between the loud noises and touch sensory overload, getting a haircut can be very stressful for many children and families. This is especially true for individuals with autism or other developmental disabilities, where haircuts can easily trigger a small or large meltdown. To help prepare for your next visit, we’ve compiled three tips to get through your child’s haircut with ease.
- Screaming, kicking, falling to the floor, and in the case of older children, perhaps even cursing – the dreaded tantrum! Many parents overthink how to manage tantrums, or worse, give in to child’s rage because they just want the behavior to STOP!
- Children with autism often dislike changes to set routines. Some examples of change include doing things in a different order, taking an alternate route to school, eating new foods, change in clothing due to weather, and switching between activities. Worrying about how your child is going to react or respond if an event does not go as planned can be anxiety-provoking and stressful!
- The holiday season can be overwhelming for most people, and even more so for a child with autism. Children may become overwhelmed by 1. changes made to their environment when trees are set up and decorations are hung; 2. traveling to unfamiliar settings when visiting relatives; 3. music, noises and commotion that often occur at holiday gatherings; 4. disruption in their schedules due to school breaks and resulting changes in sleep patterns; and 5. anticipation of the day that the Holiday season arrives.
- Now that your children have been home from school for a few weeks, you might and your family really struggling with the disruption in regular school routines. You might be working from home (as am I) and wondering how you are going to make this work, getting your work done while helping your child stay in a learning routine.
- Even the most calm and well-adjusted parents have encounters with their children which they dread. Maybe it’s bedtime, bathtime, or doctor’s visits. These are the times when parents are more likely to lose it: either the ability to remain calm or to accidentally reward a behavior they do not want to (like giving that cookie before dinner). We all do it. There is no shame in admitting it happens from time-to-time.
- Fortunately, resources are available to help make these three to-do’s a little less daunting.
Here is a list of regional, state-wide, and national resources that specialize in developmental disabilities.
The Autism Society WNY provides support to parents and caregivers of individuals with Autism Spectrum Disorder through information and referral services, Parent Support Meetings and bi-annual workshops with the goal of meaningful participation and self-determination in all aspects of life for individuals on the autism spectrum and their families.
The Developmental Disabilities Alliance of Western New York is a collaborative group of member voluntary agencies that provide services to people with developmental disabilities by assisting agencies to develop relationships, promote unified strategies and share risks for the mutual gain with and for the benefit of people with developmental disabilities.
The ECDC provides free information, referral, technical assistance and support to families, professionals, and community agencies concerned with children birth to five with suspected or diagnosed delays or disabilities.
The Children’s Guild Foundation Autism Spectrum Disorder Center at Oishei Children’s Outpatient Center provides medically-based, multidisciplinary evaluation and diagnosis of children with autism spectrum disorders.
Parent Network of WNY is a not-for-profit agency that provides resources, workshops and support groups for families of individuals with special needs (birth through adulthood) and for professionals to assist families of individuals with disabilities to understand their family member’s disability and navigate the support service system.
The Summit Center is an agency in WNY providing a range of programs and services for children and adults with autism and other developmental, behavioral and social challenges.
New York State
The Office of Special Education provides assistance to parents, advocacy groups, and schools related to services and programs for students with disabilities. Staff work together across various units to provide the most up to date policy and guidance, technical assistance, professional development, and monitoring to attain equal opportunities and positive results for students with disabilities across New York State.
The New York State Department of Education Office of Special Education provides disability specific assistance related to Autism.
The Early Childhood Direction Centers (ECDCs) provide information and referral services for children with disabilities ages birth through five, as well as professional development and technical assistance for families and preschool providers to improve results for preschool students with disabilities. The targeted areas for improved outcomes are early literacy and communication, social-emotional skills, and positive behaviors.
New York State Education Department– Regional Special Education Technical Assistance Support Centers (RSE-TASC)
RSE-TASC work in partnership with NYSED’s Special Education Quality Assurance (SEQA) offices, and other NYSED supported initiatives to provide directed technical assistance and professional development to improve instructional practices and outcomes of students with disabilities.
New York State Education Department – Office of Adult Career and Continuing Education Services (ACCES)
ACCES assists adults with a host of services to address education and employment needs.
NYS health department disseminates information, regulation, and policy to prevent disease, promote health and protect the public from health problems and hazards.
The New York State Early Intervention Program is part of the national Early Intervention Program for infants and toddlers with disabilities and their families and offers a variety of therapeutic and support services to eligible infants and toddlers with disabilities and their families.
New York State Department of Health, Early Intervention 2017 Update to the Autism/Pervasive Development Disorders Report of the Recommendations
Update to the New York State Guidelines on Assessment and Intervention Services for Young Children (Age 0-3) with Autism Spectrum Disorders based on scientific evidence and expert clinical opinion on effective practices
The New York State Office for People With Developmental Disabilities (OPWDD) coordinates services for New York residents with developmental disabilities through direct services and through a network of nonprofit service providing agencies.
Office for People with Developmental Disabilities, Developmental Disabilities Regional Offices (DDROs)
DDROs oversee catchment areas that oversee coordination of services for individuals within each region with the State Office of Mental Health, State Department of Health and other partner agencies
The OPWDD Autism Platform is a comprehensive slate of initiatives intended to specifically address the needs of people on the autism spectrum.
Parent to Parent of NYS is a statewide not-for-profit organization established to support and connect families of individuals with special needs. The 13 offices, located throughout NYS, are staffed by Regional Coordinators, who are parents or close relatives of individuals with special needs.
An organization whose mission is to promote the healthy development of children, adolescents, and families through advocacy, education, and research, and to meet the professional needs of child and adolescent psychiatrists throughout their careers.
The mission of the American Academy of Pediatrics is to attain optimal physical, mental, and social health and well-being for all infants, children, adolescents and young adults through development and dissemination of policy, advocacy, and education.
A national organization which advocates for individuals with Autism, increases public awareness of the issues facing those affected by Autism and provides the information regarding treatment, education, research and advocacy.
A national organization which disseminates scientifically sound information about evidence based treatment for Autism Spectrum Disorder and challenges unsupported or false information, and advocates for the use of scientific methods to guide treatment.
A national organization which promotes and funds research into causes and treatments for Autism Spectrum Disorder, provides information and resources aimed at increasing understanding ASD and promoting solutions for the needs of individuals with ASD and their families across the spectrum and lifespan through advocacy and support.
The CDC is one of the major operating components of the Department of Health and Human Services whose mission is to protect America from health, safety and security threats, both foreign and in the U.S.
IAN was established in January 2006 at Kennedy Krieger Institute. IAN’s goal is to facilitate research that will lead to advancements in understanding and treating autism spectrum disorders (ASDs). The IAN Community is an online environment designed to act as an inviting library and meeting place where everyone concerned with autism spectrum disorders can learn more about autism research.
The National Autism Center is a nonprofit organization dedicated to disseminating evidence-based information about the treatment of autism spectrum disorder (ASD), promoting best practices, and offering comprehensive and reliable resources for families, practitioners, and communities.
NICHD conducts and supports laboratory research, clinical trials, and epidemiological studies that explore health processes; examines the impact of disability and disease; and sponsors training programs for scientists, health care providers, and researchers.
The National Institute of Mental Health (NIMH) is the lead federal agency for research on mental disorders. NIMH is one of the 27 Institutes and Centers that make up the National Institutes of Health (NIH), the largest biomedical research agency in the world. NIH is part of the U.S. Department of Health and Human Services (HHS).
As part of the Children’s Health Act of 2000, the NINDS and three other institutes at the National Institutes of Health (NIH) have formed the NIH Autism Coordinating Committee to expand, intensify, and coordinate NIH’s autism research. Eight dedicated research centers across the country have been established as “Centers of Excellence in Autism Research” to bring together researchers and the resources. The Centers are conducting basic and clinical research, including investigations into causes, diagnosis, early detection, prevention, and treatment of autism.
A grant funded collaborative to promote the use of evidence-based practices for individuals with ASD from birth to 22 years of age.
The National Academies of Sciences, Engineering, and Medicine are private, nonprofit institutions that provide expert advice on challenges facing the nation and the world to shape policies, inform public opinion, and advance the pursuit of science, engineering, and medicine.
An organization founded and led by family members of individual’s with ASD which funds applied research and disseminates information on social, educational, and treatment concerns to improve the quality of life for self-advocates, parents, autism professionals, and caregivers.
OSERS supports programs that help educate children and youth with disabilities and provides for the rehabilitation of youth and adults with disabilities through a wide array of supports to parents and individuals, school districts and states in two main areas, special education and vocational rehabilitation.